Although I am determined, I really can’t be sure when I’ll catch an actual collapse event on video. They really only occur when the trigger is a suprise. Usually there are warnings felt in the body right before it hits and so even actual collapses can look more like a melting or slumping motion.
This though is the most dramatic close-up view of the symptom I’ve gotten yet. I’m happy with the capture because with music as the emotional trigger we are able to “see” exactly what the brain is reacting to.
Fair warning, although this is one of those “wait for it” videos, what finally happens toward the end could be disturbing to some.
Although it can at times be distressful to experience, it certainly isn’t as painful as it looks. A lot of the expressions of agony etc. are just the muscles involuntarily fighting the paralysis. Even a lot of the emotions are what could be called “pseudo bulbar”. I don’t yet know why this is a part of my condition – even the laughter has an involuntary feel to it, like random spasms of the laugh muscles, wherever those are.
Trying to get video of my cataplexy in case I need to show it to a neurologist.