The Narcolepsy Trap

This endlessly strange life became oh so much stranger last year when I was hit hard with an as of yet undiagnosed condition that in every way seems to be a very severe “late onset” case of “Type 1 Narcolepsy.
In this video you can observe many examples of my symptoms such as EDS (exsessive daytime sleepiness), Sleep-Attack, Micro-Sleep, and various forms of Cataplexy which untreated make normal functioning impossible.
So why the post title “The Narcolepsy Trap”? It has several layers of meaning…
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“Not all storms”

Not all storms come to disrupt your life…
some come to clear your path
~unknown~

This was July 30th, less than a year ago. The word narcolepsy had not yet come into the picture. A brief bit at the end shows how skinny I was. Twenty pounds under weight…

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Triggered Cataplexy

Although I am determined, I really can’t be sure when I’ll catch an actual collapse event on video. They really only occur when the trigger is a suprise. Usually there are warnings felt in the body right before it hits and so even actual collapses can look more like a melting or slumping motion.
This though is the most dramatic close-up view of the symptom I’ve gotten yet. I’m happy with the capture because with music as the emotional trigger we are able to “see” exactly what the brain is reacting to.
Fair warning, although this is one of those “wait for it” videos, what finally happens toward the end could be disturbing to some.
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Undiagnosed Sniffelepsy

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I want you to imagine if you can a world in which narcolepsy is known rather as sniffelepsy and it’s main symptoms of “sleepiness and cataplexy” are instead “having a runny nose… and sneezing”
In this world as a Type 2 Sniffelepctic your main symptom would be having a runny nose, but not just any runny nose…
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The Healthcare “System” Nightmare

About three years ago I photographed these items below because I was amazed at what I paid for all of them. 12 bucks from a dollar store, how about that! All the items have served me well, and many are still functioning as a part of my life. Hopefully the toilet brush and the sponges are long gone, cant say for sure, but wow! Look at how amazing a free market can be! How amazing? Well…

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Take for example that space-age looking pizza cutter up there that I paid only one dollar for – could I make a pizza cutter like that? Yeah maybe. I wouldn’t do it for a dollar though, or even 12 for that matter. That would be crazy. So if for some reason I couldn’t find an affordable pizza cutter would I make my own just so that I could have one? The answer is probably no. My life does not depend on having one… but what if it did?
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